Hearing was a success!!!
Please see below
Audio from hearing link expired
NOTE: Another Hearing, on OPMC reform, took place in NYC on January 31, 2002.
On November 27, 2001, hundreds of Lyme disease patients traveled to Albany, NY, to attend a New York State Assembly Health Committee hearing focusing on the issues surrounding chronic Lyme disease. Patients requested a proclamation from the Assembly that there is a legitimate scientific controversy with regards to Lyme disease and other tick-borne diseases and that, therefore, the OPMC (Medical Licensing board for NY physicians) should not be taking sides.
Members of the health committee on the podium were Committee Chair Richard Gottfried, Assemblywoman Nettie Mayersohn, Assemblyman Joel Miller, Assemblywoman Maureen O'Connell, and Assemblyman Michael Cohen.
There will be a hearing on OPMC procedures in general in NYC on January 31, 2002. This hearing will be about OPMC procedures and is expected to consist of legal and technical material. A number of groups have been pushing for OPMC reform based on lack of due process.
Many thanks to the Assembly, speakers, attendees and planners!!!
THANK YOU NOTES:
Please send thank you notes to the legislators who attended the hearing and were very responsive to the information presented. They did a huge service to Lyme patients, and deserve a big huge thanks! Also, it would be helpful to request a resolution from the entire Assembly stating that there is considerable scientific controversy as to the diagnosis and treatment of Lyme disease, and that, therefore, the OPMC should not be targeting doctors who fall on one side of the controversy. Those legislators are as follows:
Patricia Smith- President, Lyme Disease Association
Kenneth Liegner, MD- Physician, Associate Editor, Journal of Spirochetal and Tick-Borne Diseases
Alan Muney MD- Chief Medical Officer, Oxford Health Plans
Honorable Richard Blumenthal (Speaker phone)- Attorney General, State of CT
Steven Phillips MD- Physican; President-elect, International Lyme and Associated Diseases Society
Steven Schutzer MD- Asoc Prof of Medicine, University of Medicine and Dentistry of New Jersey
Brian Fallon MD MPH MEd (Video tape)- Columbia University Dept. of Psychiatry
Alan Barbour MD (Speaker-phone)- University of CA at Irvine
Carolyn Briton MD (Video tape)- Neurologist, Columbia Presbyterian Hospital
Marilynn Barkley MD, PhD- Researcher University of CA at Davis
Eugene Shapiro MD (didn't speak)- Yale Professor of Pediatrics
Carl Brenner- Columbia University, Member, Chronic Lyme Disease Study Committee of NIAID.
Robert Bransfield MD- Lyme Alliance Inc, Professional Advisory Panel
Jill Auerbach- Hudson Valley Committee for Lyme Disease Patient Advocacy
Howard Hindin DDS- Foundation for the Advancement of Innovative Medicine
Patients: Sarah Rude, Lia MaCabe, Joanna Amato
Evan White, Robert Clydesdale, Norman Rosenthal
They are working on how the transcript will be available. It is possible it will be available on the Assembly website, or on CD. Otherwise, people would need to get paper copies. But all this will take some time, and as of January 17 they do not know yet how it will be available.
If you reserved a parking spot and have not yet paid, please send a
check for $8.00 ASAP, made out to the Lyme Disease Association and mail it
The Lyme Disease Association
PO Box 1438
Jackson, NJ 08527
888 366 6611
Inside Albany, December 16, 2001
"Is there chronic Lyme Disease?"
http://www.insidealbany.com/order.html - To order video
All in the Lyme community are encouraged to submit written testimony. If
you have prepared your testimony but have not yet sent it in, please send
it in asap. Many thanks for everyone's hard work on this! Written
testimony should be sent to:
ASSEMBLY COMMITTEE ON HEALTH
Richard N. Gottfried Chair
Assembly Member Gottfried's office
822 Legislative Office Building
Albany, NY 12248
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